Addressing gaps in brain health awareness and access among Black Angelenos: Development of the Black Brain Health Network

Project Description

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Past

Black Americans are disproportionately impacted by neurodegenerative disorders such as Alzheimer’s disease, dementia, and Parkinson’s disease. However, Black communities have largely been excluded from research and clinical trial studies. This exclusion directly impacts our understanding of risk for this group and prohibits the necessary steps towards intervention. The goal of this proposal is to generate culturally tailored approaches to engage Black individuals in Los Angeles in brain health research, the first step in the development of the Black Brain Health Network (BBHN). The BBHN will serve as an interface for academia and community to build a long-lasting partnership to further the advancement of overall health in Black communities. In order to do this, we must first work towards understanding the needs of the Black communities in Los Angeles. Thus, we have brought together an interdisciplinary team with experience in community engaged research strategies and neuroscience research specific to Black life. First, we aim to establish the BBHN through community partnerships by using targeted, culturally tailored outreach approaches. Next, we aim to understand awareness and perception around neurodegenerative disorders by hosting focus groups. Finally, we plan to start recruitment in a Black health registry that can be used for clinical trial and research studies. We also plant to host a Black Brain Health Fair during this time for recruitment and in order to give back to the community. Completion of these aims will generate new, and strengthen existing, community
relationships, culturally relevant and effective education materials, and a brain health registry, along with publications. These relationships will help to further a health equity research plan for Black Los Angeles communities that will be used for future NIH funding to explore risk factors related to Black health.

Highlights

  • BBHN community events in partnership with Normandie Church of Christ:
    • Movie night screening of “Holding the Pieces,” a film series highlighting the experiences of a Black family navigating Alzheimer’s disease and caregiving, used to foster community dialogue around dementia, stigma, and brain health awareness
    • Brain health fair informed by community feedback
    • Community-centered focus groups concerning brain health, caregiving, and research engagement
  • 2025 Turken Research Award & Symposium Poster Presentation: “Bridging Trust and Translation: A Community-Based Approach to Engaging Black Communities in Alzheimer’s Disease Research”
  • Upcoming Poster Presentation at the Alzheimer’s Association International Conference (AAIC) 2026: “Bridging Trust and Translation: A Community-Based Approach to Engaging Black Communities in Alzheimer’s Disease Research”

Team Members

Kacie Deters, PhD

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Assistant Professor
UCLA | Department of Integrative Biology and Physiology

Jennifer Adrissi, MD, MS

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Assistant Professor
UCLA | Department of Neurology

Courtney Thomas Tobin, PhD

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Associate Professor
UCLA | Department of Community Health Sciences

Phelan Glenn

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Graduate student
UCLA | Neuroscience Interdepartmental Program

Other Team Members:

  • Chaunise Johnson, MS
  • Jessica Vinegar, MPH